23 signs you grew up with ehlers danlos syndrome

Ehlers-Danlos syndrome is a group of inherited disorders that affect your connective tissues — primarily your skin, joints and blood vessel walls. Connective tissue is a complex mixture of proteins and other substances that provide strength and elasticity to the underlying structures in your body. People who have Ehlers-Danlos syndrome usually have overly flexible joints and stretchy, fragile skin.

Connective tissues are made up of proteins and other substances that provide them with elasticity. In people with Ehler-Danlos syndrome, the strength of collagen is affected. Though people with Ehler-Danlos syndrome are born with the condition, it may take years before it gets diagnosed. Ehler-Danlos syndrome is a genetic condition. Over 20 genes have been found to be associated with EDS. Changes variants in these genes may disrupt the production or processing of collagen, resulting in weak bones, skin , or other parts of the body. While for some, it may be related to an underlying medical condition, these may be signs of Ehler-Danlos syndrome for a few people.

23 signs you grew up with ehlers danlos syndrome

Back to Health A to Z. Ehlers-Danlos syndromes EDS are a group of rare inherited conditions that affect connective tissue. Connective tissues provide support in skin, tendons, ligaments, blood vessels, internal organs and bones. EDS can affect people in different ways. For some, the condition is relatively mild, while for others their symptoms can be disabling. The different types of EDS are caused by faults in certain genes that make connective tissue weaker. Depending on the type of EDS, the faulty gene may have been inherited from 1 parent or both parents. Sometimes the faulty gene is not inherited, but occurs in the person for the first time. The diagnosis is made based on a person's medical history and a physical examination. It affects the blood vessels and internal organs, which can cause them to split open and lead to life-threatening bleeding. Some people have problems caused by hypermobility, but do not have any of the specific EDS conditions. You do not usually need to worry if you only have a few symptoms and they're not causing any problems. Joint hypermobility, for example, is relatively common, affecting around 1 in 30 people. It's unlikely to be caused by EDS if you do not have any other symptoms.

International Patients. These include: an increased range of joint movement joint hypermobility stretchy skin fragile skin that breaks or bruises easily EDS can affect people in different ways.

Ehlers-Danlos syndrome EDS is a group of genetic disorders that affect the connective tissues. Connective tissues are proteins, such as collagen, that provide elasticity and support to the joints, blood vessels, and skin. Most children with EDS have hypermobile joints that are prone to full or partial dislocation. However, there are several causes of hypermobility, and many children with hypermobile joints do not have EDS. Many children with EDS also have soft, fragile skin and bruise easily.

Ehlers-Danlos syndrome is a group of inherited disorders that affect your connective tissues — primarily your skin, joints and blood vessel walls. Connective tissue is a complex mixture of proteins and other substances that provide strength and elasticity to the underlying structures in your body. People who have Ehlers-Danlos syndrome usually have overly flexible joints and stretchy, fragile skin. This can become a problem if you have a wound that requires stitches, because the skin often isn't strong enough to hold them. A more severe form of the disorder, called vascular Ehlers-Danlos syndrome, can cause the walls of your blood vessels, intestines or uterus to rupture.

23 signs you grew up with ehlers danlos syndrome

Although Ehlers-Danlos syndrome EDS is a condition you are born with, it may take many years or decades before you are diagnosed. There are 13 subtypes of Ehlers-Danlos syndrome, though the hypermobile subtype is the most common. Your symptoms will depend on your subtype , but most people with EDS experience overly flexible joints, regular partial or full joint dislocations while doing everyday activities, stretchy or fragile skin, easy bruising, and chronic pain. We asked our Mighty community to share signs that they grew up with Ehlers-Danlos syndrome , which they can now recognize in retrospect. Perhaps some of these will sound familiar to you, too. If you were the kid who could always ace that flexibility test during gym class, it may have been one of the early indicators you have EDS. Being more flexible than average — sometimes way more flexible — is one of the most common symptoms of the condition. Atwal said.

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Ferri FF. Vascular EDS: This is the most severe type, and it affects the heart and other organs. Community Health Needs Assessment. Thanks from McCann. This affiliate commission does not influence the price you pay, and we disclaim any responsibility for the products or services you purchase through these links. International Patients. Check out these best-sellers and special offers on books and newsletters from Mayo Clinic Press. If you have Ehlers-Danlos syndromes, you might be able to refer yourself directly to services for help with your condition without seeing a GP. Orthopedic surgery may be recommended to stabilize loose or damaged joints. Connective tissues provide support in skin, tendons, ligaments, blood vessels, internal organs and bones.

For the Ehlers-Danlos syndrome EDS guide, we interviewed three medical experts, read numerous studies and surveyed more than people living with EDS.

Turns out I don't metabolize them as efficiently and need some additional help to meet my requirements. Digestive Disorders : Conditions like gastroparesis and inflammatory bowel disease may coexist with EDS. Advertising revenue supports our not-for-profit mission. Our team of specialists is experienced in managing EDS-related symptoms and providing support throughout your healthcare journey. Medical Professionals. Frequent Sprains and Strains : Weak ligaments and tendons make individuals with EDS more prone to sprains and strains. This specific report was more extensive than 23andme and came with a helpful guide. It can affect boys and girls from all racial and ethnic backgrounds. A more severe form of the disorder, called vascular Ehlers-Danlos syndrome, can cause the walls of your blood vessels, intestines or uterus to rupture. International Patients. Is Preeclampsia Genetic? There are many different types of Ehlers-Danlos syndrome, but the most common signs and symptoms include:.